Matthew's story: 'I was invisible'
When Matthew McKenzie’s mum became ill in 2003, his life changed overnight.
“The first time I went to see her, in the inpatient unit, I was shocked,” he says. “I thought, ‘That can’t be my mum, no way.’ But that’s the devastating impact of mental illness.”
Matthew’s mother, who previously cared for his two non-verbal autistic brothers, had developed schizophrenia. As her condition deteriorated, Matthew – then working as a programmer – suddenly found himself responsible for all three of them.
“It was a big change,” he recalls. “But that’s life, isn’t it? It was a duty.”
There are millions of unpaid carers, just like Matthew, who are working sometimes as much as 50 hours a week to look after their loved ones.
The Unpaid Care Dashboard, a new interactive online tool, visualises data around unpaid carers between 2011 and 2021. It’s the first time this data – spanning a decade – has been made accessible in such detail.
For carers like McKenzie, this kind of visibility is vital.
“When I saw this dashboard, you know, I was impressed,” he said. “Because all the time, I was firefighting, navigating the system, crisis after crisis. I was invisible. It matters that carers can be counted.”
Read more about Matthew’s story here.