Disabled people are being forced to cancel Christmas because they can’t afford it in the cost of living crisis.
Christmas has always been a special time for Keith and Helen Butler, because it is when they adopted their son Geordie. Now 22, Geordie is deafblind, autistic and has a complex genetic condition that can lead to multiple severe disabilities.
For the Butlers, the costs of caring for Geordie are mounting. They must charge and run a feeding machine, operate a specialist bed, and keep the house warm because he is susceptible to illness. The couple pay £2,250 a year to get him to day services.
The family’s income, made up of Keith’s pension and Geordie’s universal credit, can’t cover spiralling costs. Christmas is particularly difficult, as Geordie doesn’t understand that “Santa has a budget”.
“When he sees his presents under the tree, he’s so happy, he’s excited beyond belief,” Keith says.“We can’t take that from him, so no one else will be getting a present. His three older siblings will only have a token gift, and likewise our six grandchildren.”
One in three disabled people told charity Sense that they will not celebrate Christmas this year because of the financial pressures. More than a third (34%) said they will not see any friends or family or buy any festive food (37%).
“We are prisoners to our bills,” Keith says. “We can’t live, Geordie can’t live. And there are families in much worse positions, under interminable pressure. We can’t wait another winter.”
Read Keith’s story here and make a donation to Sense to help kids with complex disabilities experience the magic of Christmas here.